Another great resource from DSIG Member, Terry Kibelstis…This group is supported by NDSS and is working to advocate for Down syndrome issues at the PA state level. A number of us met through work on the federal and PA ABLE Act. This may be something our members are interested in, and it may become another […]
Young people with Down syndrome, ages 12+, who have Keystone First Medicaid Insurance, are eligible for a membership with their local YMCA for a fee of $25/year. Bring their Keystone First insurance card to the YMCA location that you wish to join and they will sign you up on a trial basis. Once your young […]
Competence and Confidence: Partners in Policymaking EARLY INTERVENTION (EI) FREE leadership development training for families of children in infant, toddler or preschool Early Intervention programs. Navigate the Pennsylvania Early Intervention System, identify best practice supports and connect with community resources. APPLICANTS should be Pennsylvania residents who Have a child—infant to school age—who receives […]
One of our DSIG members, Kelsey Mango, approached the DSIG Board about wanting to do a DSIG Digital Directory for members of DSIG to help members feel connected to each other and act as a tool for members to be in touch with each other if they have questions about schools, doctors or health issues, […]
Social Events for DSIG Members Ages 21+ If you are interested in coordinating social events for this age group, please contact Patty White at [email protected] Thank You!
Dear Family and Friends of DSIG, The board has been busy gearing up for next year. We are always looking for ideas and topics for our regular monthly meetings and activities. If you have an idea or a suggestion please feel free to reach out to Megan Califano. We have made changes to […]
This is a letter that was written by one of our new Board Members, Paul Thomas. Please read it. It was written by Paul to let you know that although the services and delivery systems have changed over the years, the needs of a child with Down syndrome have not, so it encourages you to get […]
Now that the Stephen Beck, Jr. ABLE Act has been signed into law, the most frequent question families have is, “When can we create an ABLE Account for our family member with Down syndrome?” The answer is, “Not yet.” Although the ABLE Act is now law, the Secretary of the Treasury still has to […]
The DSIG Board decided at the last Board Meeting that we will collect dues based on a calendar year which will run from January through December. The dues for membership with DSIG is $10 and it will be enforced this year. ]] Membership entitles you to our free events and meetings throughout the year. […]
To date, five Beautiful Beginnings Baskets have been delivered to families who have given birth to a child with Down syndrome in a Delaware County hospital. Baskets have been delivered to each hospital in Delaware County to have available to give to a family to celebrate their beautiful beginning. Here’s the link to the […]
Congratulations to all of our DSIG 2014 Graduates! Hats off to all of you for a life full of happiness and adventure! If you have a photo of your 2014 graduate that you would like to share with the group, please send it to Patty. Above is a photo of one of our graduates, Nate […]
DSIG is thrilled to announce our partnership with “Beautiful Beginnings” to celebrate the new life of a baby born with Down syndrome. This venture was started by Kelsey Mango because she believes that everyone should have a “Beautiful Beginning”! The baskets are filled with positivity and great resources for the families about Down syndrome. To […]
Notre Dame Academy in Villanova, PA will once again be hosting a iCan Shine Bike Camp from Monday, 7/7/14 – Friday, 7/11/14. DSIG will reimburse families for the cost of the camp, which is $225, upon completion of the camp. This camp was formerly known as the Lose The Training Wheels Bike Camp and has […]
Temple University’s Department of Public Health and the Institute on Disabilities are conducting research about emergencies and disasters. Our goal is to help emergency managers and people with disabilities work together when they are creating plans for emergencies. We would like to know about your experiences as people with intellectual and developmental disabilities or their […]
Welcome to our new website. We are pleased that after a few months of hard work and your patience we have now launched the new delcodsig.org! We hope you like the new design. Below is a quick guide to see what changes have been made and help you navigate the site. Click the image below […]
Educational Series The Trisomy 21 Program at The Children’s Hospital of Philadelphia, in cooperation with Hinkle, Fingles & Prior, attorneys at law, is hosting a two-part educational series on March 22 and April 26, 2014. The events will provide important information to families of children and adults with Down syndrome. The first session will focus on concerns that may […]
The date has been set! Please join us for another morning of FUN and friendship. We will be in need of Silent Auction items and baskets for our Basket Raffle. Also, if you have a suggestion for a new sponsor for this year, please contact Patty at, [email protected] We will also need volunteers to help […]
SIBLING PAIRS NEEDED FOR ACTING WORKSHOP The Institute on Disabilities is seeking two sibling pairs to help further the development of its play, A Fierce Kind of Love. When March 10 and 11, 2014 Where Temple University, Main Campus Time 10am – 4pm The Institute on Disabilities is using public performance to tell the story […]
Today is the 41st anniversary of Roe vs. Wade and the annual march to Washington to oppose the legalization of abortion. You probably won’t hear much about it in the news because the event doesn’t get much press. Colleen and Ed Lynch’s son, Danny, was born with Down syndrome. God gave Ed and I a wonderful […]
Helen and Mark Milligan What was your immediate response in realizing Aidan had Down Syndrome? Mark: I wasn’t prepared for that as a possible outcome, and so my reaction was one of shock at first, but then Aidan was about to go into surgery for a pretty significant thing, so while the diagnosis was a […]
Our son, Joshua, was born 13 years ago, and little did we know the gift God had given to our family. Josh was born with Down Syndrome, which left us wondering what to expect. We decided to set aside any preconceived ideas, and believe that Josh could go beyond all expectations. He has proven us […]
We are very excited our Educational Advocacy Program* in partnership with the Arc of Delaware County and we are pleased to provide additional details about the plan and hopefully clear up any misconceptions about what the Program provides to our members. The Educational Advocacy Program will provide the following services: Educational Advocacy for our […]
Ellie Bartoli – Lose The Training Wheels Camp My daughter Ellie is 13 years old with Down Syndrome. She has two younger siblings who have learned to ride a bike. My wife and I have tried to teach her to ride her bike but have not been able to do so. When the announcement […]
Cheerleading program for girls with Special needs Age: 7-11 What: learning the basics of cheer leading including cheers, motions, jumps, stunts and DANCE. Where: We will cheer along side the Seniors during home games we will also perform a dance that will be taught from the start of the season. Get Involved: Contact […]
My pride story spans seven years – actually seven snowy winters. We are a skiing family and one of our goals was to have Nate join his brother Dylan, sister Annie and his parents on family ski trips and actually hit the slopes. My husband Jeff and I had taught Annie and Dylan to […]
Forever Friends is a unique and exciting new inclusive children’s show targeted for kids ages 2-7. It stars Chris Burke, the actor with Down syndrome best know as “Corky” on the hit ABC-TV series “Life Goes On” and Joe and John DeMasi. Forever Friends brings a message of love, friendship and inclusion as children follow Chris, Joe and John, their […]
Brian Taff from ABC News recently published a story on the 6ABC news site that featured Rachel Rhea from Newark High School. Rachel has Down Syndrome, a fact that in many places might have meant she wouldn’t have gotten a chance to be on the high school cheerleading squad. But THIS high school team saw […]
Here’s an interesting Blog we encourage everyone to visit. Geralyn Arango, a Mom, a Professor, a passionate iPad user, and now a blogger blogging about the innovative attempts to incorporate an iPad to assist her son Nicholas and his IEP team, is hoping our Group can provide some feedback. Her son is 13 and has Down Syndrome, […]
The NDSS has published an updated set of health care guidelines from the American Academy of Pediatrics. The Down Syndrome Health Care Guidelines follow an individual’s development from birth through adulthood and provide information about potential health concerns at each stage.
Here is an interesting story concerning the federal government’s hiring policy and especially how it pertains to those with disabilities. Visit http://www.whitehouse.gov/blog/2011/10/14/hiring-people-disabilities to read more about this unique policy.
The 21 Research Resource Act will expand and intensify Down syndrome programs of the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to create an infrastructure of Down syndrome tools, including a Down syndrome contract registry, Down syndrome research database, and Down syndrome biobank. These research resources will further […]
The Arc.org, a national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families, reported that last week, House Budget Committee Chairman Paul Ryan (R-WI) released his Fiscal Year 2012 spending plan (known as a budget resolution). This plan pulls the plug on people with disabilities, seniors, students, and the […]
Ronald Nagel, son of Mr. and Mrs Nagel, is featured in this inspiring piece published in the Marple Newtown Patch. The article talks about his life long love of swimming and his achievements with the Marple Newtown Swim Team. You can view the entire article here.
On July 14, 2011 my sister and I joined a group of people from our church to go to help build and fix up houses for Habitat for Humanity in Ripley, West Virginia. It took all day to drive there, on the way in our rented van we got to know each other. Some people […]
My son David Perry is a high school football player. He’s stocky and strong, very social and respected by his peers. David also happens to have Down Syndrome. Our neighbor always told him that he was “built to play football.” As David’s transition to ninth grade and the local high school approached, I asked […]
Today, I read an interesting blog post about a boy with Down Syndrome and his unexpected revelations to his mother as observed by casual onlookers. Click here to read the post.
A program catered towards the junior (5-12 years of age) age bracket heads into its third season with strong momentum behind it. While a similar program existed prior to that, it was disbanded for a year before being restarted three years ago. The program was small when it was re-started: 3-4 children participating on a […]
Elwyn Genetic Services is pleased to announce we are now offering Sibshops. Sibshops are workshops created for the siblings of children with special needs. Sibshops offers a lively mixture of games, discussion, and guest speakers. Sibshops are open to all siblings of children with special needs ages 8 through 12 years of age. Siblings with […]
The Creed of Children with Down Syndrome Below is an inspiring poem, penned by an unknown author, that eloquently describes a life long struggle for children with Down Syndrome. “My face may be different But my feelings the same. I laugh and I cry And I take pride in my gains. I was sent here […]
KATRINA AND SAMUEL STAFFORD “We were told that he could never learn and had to be trained.” Three years ago Katrina Stafford’s life turned down a road that she and her husband Samuel weren’t prepared to travel and left them wondering which way to go. Katrina, a native of Northern Ireland, moved to the U.S. […]