September 11th 2008 "Monthly RMM Meeting"
Our first special guest for the kick off meeting will be author Brian A. Beale, who has written a book titled "Colin Gets a Chance". In the author's own words, the book "is an inspirational look into a day in the life of a special needs little boy and how the acts of a child's peers can have such a significant impact". The story takes place on the day of the biggest game of the year. The game is tied, the winning run is on third, and Colin hasn’t been chosen to play all season. Colin sits on the bench and dreams of playing the game he loves when his teammate, Billy, on behalf of the team, asks the coach to let Colin bat for him. They all decided it was now their turn to cheer for Colin.
Brian will talk about the book and the inspiration behind the book. Please take some time to visit Brian's website, www.colingetsachance.com, too.
Our second special guest will be Dr. Mary Pipan. Dr. Pipan came to CHOP after practicing general pediatrics in rural West Virginia for 5 years and having 3 children there. She completed a
developmental behavioral pediatrics fellowship at CHOP and stayed on as
an attending, developing an interest in children with genetic syndromes.
In 2003, she was asked to take part in the Trisomy 21 Program, which was
initiated with the support from the Friends of Trisomy 21, through the
Buddy Walk at Villanova. They now have 3 developmental behavioral
pediatricians working in the program, a fellow, a social worker, and
educational consultant, PT, OT and audiologist, and hopefully a speech
therapist soon. They have identified a network of subspecialists and
providers within CHOP and in the area, and are always on the lookout for
more resources. They conduct an annual day long symposium in the spring
for parents and professionals.
You can download a hard copy of Dr. Pipan's PowerPoint presentation here. You will need Microsoft's PowerPoint viewer to view the presentation. Or you can downlaod a converted PDF version of the presentation here.
